So, What Are My Options?
Work and day programs after high school.
~ by Rita Mandik, Director, Ken-Crest EmployNet.
There are several different work and “day programs” available, and sometimes it can be very confusing to understand what they are each all about! A brief description of some of those services and options is listed below. Please keep in mind that services do tend to differ from location to location and agency to agency ~ this is only a basic introduction. Click here to read more...
Office of Mental Retardation
The Office of Mental Retardation (OMR) is the gatekeeper of services for adults with mental retardation. Call the main office at 20 S. 69 th Street in Upper Darby,
l 610-713-2400 to be sure that your child's case file is open and active. It is not the responsibility of the school district to register your child with agencies serving adults.
Your OMR supports coordinator will assist you in contacting other agencies such as the Office of Vocational Rehabilitation (OVR), Social Security Administration, County Office of Assistance for Medical Assistance , transportation services, and local provider agencies that will support your child's post-high school plans. Invite your OMR supports coordinator to attend each IEP meeting.
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What is Waiver Funding? ~ From the PA Dept. of Public Welfare Website
http://www.dpw.state.pa.us/
- Waivers can provide funding for the supports and services that you need in order for you to remain in your home and community.
- You will have a choice of the approved waiver services you receive in order to meet your needs. These needs are identified when you do person centered planning that looks at your total life.
- You will have a choice of qualified people or agencies that provide supports or services that you need.
- Your health and safety will be assured.
- Supports and services will be monitored for quality. You will play an important role in deciding if you are receiving quality supports and services. If you are not satisfied with the quality, then you need to talk with the person or agency that provides your supports about improving the quality. You may also decide to choose a different provider. Supports Coordinators, County MH/MR Programs, the Independent Monitoring Team for Quality in your county and the Office of Mental Retardation all monitor for quality.
After I Apply for Waiver Funding, What Happens Next? If you are found eligible for waiver services and there is sufficient funding and capacity, you will begin to receive services. If there is not sufficient funding and/or capacity to serve you, you will be placed on a waiting list.
Your county will determine your place on the waiting list based upon the Prioritization of Urgency of Need for Services (PUNS) form that you complete with your Supports Coordinator.
How Long Will It Take to Get the Supports and Services That I Need? The primary factors that determine when you receive services are whether funding is available in your county and the urgency of your need. Each county gets an annual allocation of state and federal funds from DPW. Counties must prioritize people in the emergency and critical categories and enroll them in services up to the limit of their allocation.
Your urgency of need for services is determined from your completed PUNS form. There are 3 categories of need. The first, "Emergency Need" means you need support immediately. The second, "Critical Need" means you need support within one year. The third, "Planning for Need" is when your need for supports or service is more than a year away.
To read the entire article on Waivers, go to http://www.dpw.state.pa.us/
Office of Vocational Rehabilitation
Phone: 1-800-221-1042
Website: Transition from School to Work
OVeRVIEW - The OVR Online Newsletter - OVeRVIEW is a monthly online publication with news and events of interest to customers of the Office of Vocational Rehabilitation and Pennsylvanians with disabilities.
OVR, a division of the Department of Labor and Industry, works with families, the Office of Mental Retardation, and schools in assisting adults with disabilities prepare for and find appropriate employment.
During the final year of high school, students should be referred to OVR by the high school transition coordinator or their family. Clarify who will contact OVR during the IEP meetings two years prior to graduation.
You should:
- Work closely with your supports coordinator from the Office of Mental Retardation in coordinating services from the Office of Vocational Rehabilitation.
- Discuss post-high school education and training options, such as community colleges and vocational schools, with your child, the IEP team, your supports coordinator from OMR, and a vocational counselor from the Office of Vocational Rehabilitation.
Call those colleges or vocational schools to ask about supports offered by their office of disability services. What non-credit courses do they offer to students with developmental delay? What documentation of disability do they require?
- Request a community-based work assessment from OVR for your son or daughter. This involves choosing an appropriate job/s based on your child's abilities and interests, and then observing your child's job performance at the job site/s.
- Choose an adult services provider agency, such as Ken-Crest, to provide on-site job coaching, usually funded through OVR. Then, contact that provider agency's liaison with OVR to expedite the initial OVR intake meeting.
- Discuss how your child will get to and from work, and whether he/she will need public transportation training and services.
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Social Security Administration
Phone: 1-800-772-1213
Website: Social Security Online Search under "Social Security Disability and Supplemental Security Income"
Information for youth with disabilities, transition, and employment issues can be found at: Youth With Disabilities.
The Social Security Administration pays monthly cash benefits to people ages 18 to 64 with disabilities who are not able to support themselves. Currently, eligibility for benefits restricts earnings to no more than $800 per month and restricts savings or personal assets, including life insurance policies, to no more than $2000.
Social Security disability programs also offer healthcare coverage or medical assistance through Medicare and Medicaid.
You should:
- Call your local Social Security Office three months prior to your child's 18th birthday to begin the registration process. Ask that the "Disability Report - Adult Form" be mailed to you. This is the preliminary form that must be filled out to secure Supplemental Security Income.
- Make an appointment with the Social Security Office to complete the registration process within 30 days of your child's 18th birthday. You may register at any time after the 18th birthday but benefits are not retroactive.
- Your child becomes eligible for a medical assistance card at the time of diagnosis of a disability. If he/she does not already have an MA card, request one now through Social Security to assure that your adult child has healthcare insurance. Parents' income is not considered when applying for medical assistance for a child with a medically-diagnosed disability.
- Contact your SS Office when your son or daughter begins to work and report monthly earnings by submitting paystubs to your SSA office.
- Once your transitioning youth is working, the SSI benefits will be reduced by a formula but your child will NOT lose benefits.
- In-school youth who receive SSI and work are eligible for a "student earned income exclusion."
- Upon turning 21, your adult child will be re-determined for adult eligibility.
- Contact your local Benefits Planning Assistance & Outreach coordinator. Your local SSA Office can provide you with that contact information.
- When your child with a developmental disability who is working turns 21, they are eligible to buy into MAWD (Medical Assistance for Workers with Disabilities). Upon turning 21, the SSI-Medicaid asset test shifts from $2000 to $10,000.
- GovBenefits.gov connects people in need to government assistance programs. www.GovBenefits.gov is the official benefits web site of the U.S. government. The site provides citizens with a central location to find more than 1,000 federal and state benefit programs that meet their needs.
- Social Security Benefit Eligibility Screening Tool for SSI and SSDI .
The Social Security Administration provides a simple web-based tool to see if an applicant might be eligible for benefits from any of the programs they administer. This tool will provide eligibility information based on the answers given by an applicant; however, BEST is not an application for benefits. For more information go to http://www.ssa.gov/best.
- The Centers for Medicare & Medicaid Services (CMS) have updated the Medicare Prescription Drug Plan Finder , Formulary Finder and Landscape of Local Plans, all of which are available at www.medicare.gov. This Guide is part of the Medicaid Reference Desk, which explains Medicaid for people with cognitive disabilities. To go to the Medicaid Reference Desk home page, go to www.theDesk.info
- The Delaware County BPAO contact is at PA Protection & Advocacy at 1-800-692-7443.
The Red Book serves as a general reference source about the employment-related provisions of Social Security Disability Insurance and the Supplemental Security Income Programs for educators, advocates, rehabilitation professionals, and counselors who serve people with disabilities. Available online at http://www.ssa.gov/redbook/
PABSS Project. Pennsylvania Protection & Advocacy, Inc. (PP&A) is concerned that the state’s citizens with disabilities are not taking full advantage of one of our programs. It is called PABSS, which stands for Protection and Advocacy for Beneficiaries of Social Security.
These services are for Social Security beneficiaries who are in the process of preparing for work, seeking work, or working. The PABSS Project protects the rights of SSDI beneficiaries and SSI recipients who have a disability and wish to gain or continue work. PABSS services are free.
The PABSS Project assists Social Security beneficiaries to overcome discrimination and barriers to obtaining work, returning to work, and/or maintaining work. This includes barriers that impede access to vocational and rehabilitation services, barriers to employment and support services (including transportation) necessary to enter the workplace, and reasonable accommodation s for your disability at your place of employment.
Please contact us with questions or concerns:
Pennsylvania Protection & Advocacy, Inc.
1414 North Cameron Street , Suite C
Harrisburg , Pennsylvania 17103
(800) 692-7443 ext 301 or (877) 375-7139 (TDD/TTY)
Email: intake@ppainc.org Website: http://www.ppainc.org
If we are not immediately available, please leave your name and telephone number with area code and we will return your call. Please feel free to pass along this information to other persons who may benefit from it and/or to include this information in other listservs and newsletters.
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Transportation Services
Delaware County offers several transportation services for adults with developmental disabilities. If you live within 3/4 mile of SEPTA service and your destination is within 3/4 mile of SEPTA service, SEPTA should provide you Paratransit service.
To apply for paratransit services, you must complete a lengthy application. Part of that application is a "Release of Information" agreement allowing SEPTA to contact the applicants' health care provider or rehabilitation professional to obtain information on the diagnosis, medications, and prognosis of the applicant to evaluate their need for SEPTA Customized Community Transportation (CCT) services. It may also be necessary for the applicant to have an in-person interview and/or functional assessment in order to complete the application process.
Ride reservations may be made three (3) days in advance. There is a waiting list for long term scheduling. The cost is the same as the regular SEPTA fare (Trailpasses may also be used).
Contact:
- SEPTA – suburban services
215-574-2780
- SEPTA CCT
215-580-7145
- Community Transit of Delaware County
610-490-3977. (Must obtain a ParaTransit card through SEPTA).
You should:
- Coordinate transportation training and home-to-work transportation services through your supports coordinator at the Office of Mental Retardation. Discuss transportation concerns with your counselor at the Office of Vocational Rehabilitation and with your adult services provider agency representative.
- Obtain a non-driver's photo ID from a State Police Examination Center.
- Be proactive in securing these services. Transportation challenges frequently result in job loss.
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Promoting Employment for Youth who Receive or are Eligible for SSA Benefits
~by John Miller, BPAO Project Director, AHEDD
Many young adults with disabilities qualify for cash benefits and related health care through the Social Security Administration (SSA). For many parents, beneficiaries, and community agencies these programs are confusing. There is a good deal of misinformation which can undermine the goals and future aspirations of young adults.
SSA administers two cash benefit programs for people with disabilities: Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). These programs are different in their purpose, history, and scope. It cannot be overemphasized that employment affects these programs differently!
Promoting Employment for Youth who Receive or are Eligible for SSA Benefits ~by John Miller, BPAO Project Director, AHEDD
Many young adults with disabilities qualify for cash benefits and related health care through the Social Security Administration (SSA). For many parents, beneficiaries, and community agencies these programs are confusing. There is a good deal of misinformation which can undermine the goals and future aspirations of young adults.
SSA administers two cash benefit programs for people with disabilities: Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). These programs are different in their purpose, history, and scope. It cannot be overemphasized that employment affects these programs differently!
Supplemental Security Income (SSI) is payable to adults or children who are “disabled or blind, have limited income and resources, meet the living arrangement requirements, and are otherwise eligible.” The monthly SSI amount includes a federal benefit rate ($603 CY 06) and a PA state supplement ($27.40). The design of the SSI program is such that a recipient is obligated each month to report changes in earned and unearned income, so that the SSI amount is properly adjusted.
As a general observation, SSI is a work friendly program. Assuming on-going eligibility, the SSI recipient who works may have a reduced SSI payment but will have significantly greater monthly income. For CY 06, an SSI recipient who receives the standard SSI, excluding state supplement, with no unearned income or specific work incentives would need a monthly income of least $1,291 in order to have the SSI reduced to $0. Furthermore, the PA recipient would need to earn an annual salary of $26,451 (current PA Medicaid Threshold) in order to be at the point of termination due to income.
There are a variety of work incentives specific to persons receiving SSI. The Student Earned Income Exclusion is specifically for in-school youth under 22. For CY 06, a student can have up to $1,460/mo. and $5,910/yr. of earnings excluded from reportable earnings.
Social Security Disability Insurance (SSDI) is the public’s long-term disability insurance program. One is eligible for “Title II” benefits as a result of working, but having/acquiring a disability which prevents the person from earning substantial gainful activity (CY 06: $860/mo.). In addition, children with disabilities may be eligible for a prorated share of a parent’s Social Security, under “Childhood Disability Benefits” (CDB). It is possible that these “children” may continue to receive CDB into adulthood. There are specific work incentives applicable to SSDI, as well as work incentives that are common to both SSI and SSDI. New work incentives include: Ticket to Work, and Expedited Reinstatement.
Social Security's Representative Program provides financial management of the SSDI and SSI payments for beneficiaries who are incapable of managing their Social Security or SSI payments. Having power of attorney or a joint bank account with the beneficiary is not the same thing as being a representative payee. Representative payees are expected to report all relevant changes to SSA including changes in income, living arrangement, and other eligibility requirements.
The Benefits Planning Assistance & Outreach Program (BPAO) has been established in each community through cooperative agreements with SSA. The BPAO service provides individualized information about the impact of work on the SSA cash and related benefits of the beneficiary. Individuals who receive SSI and/or SSDI may be eligible for BPAO services beginning at age 14.
In PA, SSI recipients are automatically eligible for Medicaid. There are additional ways in which persons can become eligible for Medicaid. The PA Department of Public Welfare (DPW) offers Medical Assistance for Workers With Disabilities (MAWD) to persons 16 and older. Individuals must have a severe disability (i.e. comparable to eligibility for SSA benefits) and must be working. Under MAWD, DPW has increased the Medicaid asset limitation from $2,000 to $10,000.
For further information, contact John Miller, AHEDD (717) 763-0968 ext 118 or john.miller@aheddorg
Additional Resources
For additional information about school to work transitioning, visit:
A consumer guide to public Vocational Rehabilitation (VR)
Now available at StateData.info: data on individuals who completed VR services in fiscal year 2003. For every state, you can find out how many people found jobs through the VR system, the hours they worked, the number of people who used supported employment, and the average cost per case-- to name a few.
The StateData.info website creates charts of disability services and outcomes from variables users choose. You can compare states, view national trends, or download files to analyze on your own computer. In the Individual Outcomes section, you can view competitive employment outcomes by disability, age, gender, and educational status. StateData.info can give you a better picture of employment and disability in the U.S. and help you argue your case. This service is FREE.
2003 VR Data -- http://www.StateData.info
• The ARC
Scroll down to find "Employment/Transition to Work"
• The ARC of Delaware County 610-325-3950
• Delaware County Intermediate Unit
• Everyday Lives Advisory Committee 610-713-2154
• Education Law Center (215) 238-6970
• Freedom Valley Disability Center Assists persons with disabilities achieve independent living; serves Delaware, Chester, Delaware and Montgomery Counties Newtown Square PA 610-353-6640
• Ken-Crest EmployNet
Offers employment/career development and training for people with developmental disabilities, including transition guidance and support services in high school and transportation training. 610-327-2880
• PA Dept. of Public Welfare
• PA Office of Mental Retardation
• Partners in Employment
Partners in Employment is a self-study course designed to help people with developmental disabilities find meaningful jobs and jumpstart their careers. Since 1987, Partners in Policymaking ® participants have strived to create a new employment culture - one in which willing workers are welcomed and embraced by satisfied employers and a supportive public. Hundreds of individuals with developmental disabilities and their family members have learned new, exciting ways to open the world of work to everyone.
• Pennsylvania Parent Education Network
• PaTTAN (Pennsylvania Training and Technical Assistance Network)
• Transportation Advocacy Project, lists transportation options for all PA counties
• Transportation Resource Manual to Facilitate Inclusion of Persons with Disabilities , published by The ARC. Click on Community Services
• Transition Link - Supporting transition-age youth with disabilities
• ACTION (Accessible Community Transportation In Our Nation)
Project ACTION works with transit, disability and consumer organizations, and federal agencies to improve transit accessibility. The site includes a database of accessible transit services throughout the United States. It also provides materials to train transit personnel to work with customers with disabilities.
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Delaware County High Schools
Chester High School
232 W. 9th Street
Chester, PA 19013
Ph. 610-447 - 3700, 3772
Chichester High School
3333 Chichester Avenue
Boothwyn, PA 19061
Ph. 610-485-6881
Conestoga High School
200 Irish Road
Berwyn, PA 19312
Ph. 610-240-1000
Garnet Valley High School
552 Smithbridge Road
Glen Mills, PA 19342
Ph. 610-579-7745
Haverford High School
200 Mill Road
Havertown, PA 19083
Ph. 610-853-5900, ext. 2000
Interboro High School
16th Street & Amosland Road
Prospect Park, PA 19076
Ph. 610-237-6410
Marple Newtown High School
120 Media Line Road
Newtown Square, PA 19073
Ph. 610-359-4218
Penn Wood High School
100 Green Avenue
Lansdowne, PA 19050-1699
Ph. 610-284-8080
Penncrest High School
134 Barren Road
Media, PA 19063
Ph. 610-627-6200
Radnor High School
130 King Of Prussia Road
Radnor, PA 19087
610-293-0855
Ridley High School
901 Morton Avenue
Folsom, PA 19033
Ph. 610-237-8034
Strath Haven High School
205 South Providence Road
Wallingford, PA 19086
Ph. 610-892-3470 x 2105
Springfield High School
49 West Leamy Ave
Springfield, PA 19064
Ph. 610-938-6150
Sun Valley High School
2881 Pancoast Avenue
Aston, PA 19014
Ph. 610-497-6300 Ext. 2350
Upper Darby Senior High School
601 North Lansdowne Avenue
Drexel Hill, PA 19026
Ph. (610) 622-7000
Unionville High School
740 Unionville Road,
Kennett Square, PA 19348
Ph. 610-347-0970
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Additional Resources:
"To Work or Not to Work"
… that is a question being asked by many individuals with disabilities and their family members as they begin to think about going to work in their local communities. This fact sheet addresses frequently asked questions by family members and provides answers to dispel the concerns. After reading this, it is hoped that family members will agree that the answer to the question: "To Work or Not to Work" is "To Work!"
Question: I have been told that my son / daughter is not ready to work in the community.
Answer: Customized employment eliminates the need for a person to "get ready" to work. If your son / daughter wants to go to work, then it is time for him / her to go. A key aspect to customizing employment is finding work that matches your son's / daughter's interests and skills. Using this approach, a personal agent or employment specialist works closely with a job seeker to negotiate a specific position that uses the person's talents to match the needs of a business. The goal is not just to locate any job, but a job specifically negotiated that capitalizes on your son's / daughter's interests and abilities.
(Click here to read the entire article)
The 30-Day Placement Plan: A Road Map to Employment (August 2005). This brief from the Institute for Community Inclusion teaches readers how to break the job search process down into a series of tasks that will lead to employment, develop a plan for employment that is driven by the job seeker, and include the job seeker’s personal as well as professional support networks in the job search process.
http://www.communityinclusion.org
Impact: Feature Issue on Meeting Transportation Needs of Youth and Adults with Developmental Disabilities (Summer 2005) (Newsletter). For youth with developmental and other disabilities, the opportunity to acquire knowledge, skills, and experience in using public transportation as well as other transportation options is key to preparation for adult community living. This issue of the Impact newsletter from the Institute on Community Integration, University of Minnesota offers strategies for meeting these and other transportation needs of youth and adults with disabilities.
http://ici.umn.edu
Neighbours Inc. High School Transition Project assists youth with developmental disabilities and their families build successful transitions from school to adult life. Program includes a Youth Leadership Forum and Parent Networking Groups and transition curriculum trainings. For information contact Matt DiMarco, Project Manager at 610-952-5154 or matthew.dimarco@gmail.com. www.neighbours-inc.com
New Freedom Initiative Website . The President's New Freedom Initiative has developed a user friendly disability website that has links to more than a dozen governmental agencies and many non-profit organizations. People with disabilities, their advocates, and professionals can search by topic and don't need to know which organization to look for. The general topics are employment, health, transportation, housing, civil rights, benefits, technology, and community life. The web site can be found at:
http://www.disabilityinfo.gov
PA Assistive Technology Foundation provides low-interest loaks to people with disabilities so that they can buy the assistive technology devices and services they need. Contact 1-888-744-1938 or visit www.assistive-technology4pa.org.
www.sharedwork.org is a Web site funded by the US Dept. of Education Office of Special Education Programs and sponsored by the IDEA Partnership and the National Association of State Directors of Special Education for the purpose of connecting stakeholders in the national Communities of Practice (CoP), participating states' CoP and Practice Groups to develop their shared work and best practices of transition
The next stop on the journey: Post-High School Education |